The Sickle Cell Community Consortium is a nonprofit organization formed to “harness and amplify the power of the patient voice.” The Consortium includes sickle cell community-based organizations, patient and caregiver advocates, community partners, and medical and research advisors.

SCDAA empowers community-based organizations to support quality of life for people living with sickle cell disease, as well as raises public awareness while advancing the search for a cure. Their initiatives bring multiple organizations together to advocate for people affected by sickle cell disease.